Apply for support
Family support
Our first pilot is for families living in Scotland. We hope to offer support across the UK later, subject to funding and trustee approval.
Your child may be eligible if:
They are under 18
They live in Scotland for this pilot
They have a confirmed rare disease
You can provide professional evidence confirming the diagnosis
They have not already received support from us during this calendar year
What you can request
A day out, a practical item or another form of support may be considered. Decisions depend on eligibility, available funds and trustee approval.
Send an enquiry online
Complete this short form to tell us how to contact you and what kind of support you are interested in. It is the first step, not a completed grant application. We will explain the full application and how to provide diagnosis evidence securely.
Please do not put your child’s name, diagnosis or medical documents in this form. Do not send medical records by ordinary email.
Before submitting, read our family enquiry privacy notice. It explains which details we collect, who sees them and how long we keep them.
If the form does not display on your device, open it in a new window. Please read our privacy notice before submitting there too.