Our policies
Website Terms and Conditions
Approved by the trustees on 1 October 2026. Review due October 2027, or sooner if our operations change.
Purpose
These terms explain how visitors may use the charity website and the limits applying to its information and services.
About us
Here & Now Children's Rare Disease Support is a Scottish Charitable Incorporated Organisation registered in Scotland under charity number SC055345. Our website is hereandnowcharity.com. You can contact us at info@hereandnowcharity.com or at 13 Almondbank Drive, Livingston, EH54 5JU.
Using this website
By using this website, you agree to use it lawfully and not to damage, disrupt or misuse it. You must not attempt to gain unauthorised access, introduce malicious software, impersonate another person or submit information you know to be false.
Information and eligibility
We aim to keep website information accurate and current, but general information is not medical, legal, financial or other professional advice. Information about support does not guarantee eligibility or an award. Every application is assessed under the Grant Application Terms and available charitable funds.
Applications and communications
Submitting a form or contacting us does not create a contract, entitlement or promise of support. Applicants are responsible for providing accurate information and notifying us of relevant changes. We may contact an applicant to verify information or request proportionate evidence.
Intellectual property
Unless stated otherwise, the charity owns or is licensed to use the website text, branding and original materials. You may view, download or print reasonable extracts for personal, non-commercial use. You must not falsely suggest endorsement, alter our materials misleadingly or use our name or logo for fundraising without written permission.
External services and links
Links to external websites are provided for convenience. We do not control their content, availability, security or privacy practices. Separate terms may apply to donation, payment, booking or social-media services.
Liability
Nothing in these terms excludes liability that cannot lawfully be excluded. To the fullest extent permitted by law, the charity is not responsible for loss caused by reliance on general website information, temporary unavailability, or third-party websites and services. This does not limit any responsibility arising from our negligence or other legal duty.
Changes and governing law
We may update the website and these terms. The version published on the website applies from its stated effective date. These terms are governed by Scots law and disputes are subject to the jurisdiction of the Scottish courts, unless applicable consumer law provides otherwise.